Suchira Get-Kong. Symptom experience palliative care and spiritual well-being in patients with advanced cancer. Doctoral Degree(Nursing). Mahidol University. Mahidol University Library and Knowledge Center. : Mahidol University, 2009.
Symptom experience palliative care and spiritual well-being in patients with advanced cancer
Abstract:
Cancer is a major health problem and the leading cause of death in Thailand. Many
patients are diagnosed with advanced stages of the disease with deteriorated physical, psychological,
social, and spiritual dimensions. Thus, healthcare providers need to understand patients status and assist
them with dealing with a life-threatening experience.
The purposes of this study were to explore the characteristics of symptom experience,
palliative care, and spiritual well-being, as well as their relationships in patients with advanced cancer.
The Symptom Management Model and palliative care concept was employed as a conceptual
framework. The participants in this study were two hundred and forty Thai patients with advanced
cancer who visited or were admitted to three tertiary hospitals in Bangkok and nearby. They were
purposively selected to complete four questionnaires: a Demographic Questionnaire, the Memorial
Symptom Assessment Scale, Palliative Care Assessment Form, and Spiritual Well-Being Scale.
Descriptive statistics were used to describe symptom experience, palliative care, and spiritual wellbeing
characteristics, while multiple regression analysis was used to examine the relationships and
predict symptom experience in three dimensions as well as palliative care on spiritual well-being.
The results revealed the most common symptom reported by prevalence and distress was
pain. Difficulty swallowing was reported as the most frequent symptom, whereas not looking like
oneself was the most severe symptom. There was a variety of palliative care strategies used including
pharmacological and nonpharmacological management strategies. Analgesic and adjuvant drugs were
the medications used most. The nonpharmacological management was categorized into four major
groups: psychosocial group, mind-body intervention and spiritual group, physical group, and traditional
medical herbs and diet group. The strategic management used most in the psychosocial group were the
strategies of getting information/advice for self-care, and talking to someone who gave support/courage.
The reported source or provider of knowledge was a nurse. Most participants presented moderate to
high spiritual well-being. Each symptom dimension had a highly significant positive relationship,
whereas palliative care had a significant positive relationship with spiritual well-being, and a negative
relationship with symptom distress, frequency, and severity. Spiritual well-being had a significant
negative relationship with symptom distress, frequency, and severity. Symptom severity and palliative
care together significantly accounted for 48.9% of the variance in spiritual well-being. A slight
difference was shown in symptom distress and palliative care which accounted for 48.8% of the
variance, while symptom frequency and palliative care explained 48.3%.
The findings suggest that patients with advanced cancer rated symptoms experienced
differently across dimensions. Patients used a combination of palliative care strategies provided by both
conventional care and complementary therapy which enhanced spiritual well-being. Further study
should emphasize the development and testing of interventions based on the effective management
strategies reported by patients in this study
Mahidol University. Mahidol University Library and Knowledge Center